Tonight, I would like to take a few minutes to update our family and friends both far and near on Lemuel’s current condition.
We were given very encouraging news yesterday regarding Lem’s MRI, that was actually far better than anyone expected and what everyone was hoping for. On a scale of what can be determined by the radiologist, pediatric intensivist, and neurologist, they find the MRI to be very encouraging with markers of “Mild Damage” to the brain. This is very encouraging, but the brain is a mysterious organ and has not yet fully awakened.
With Lem’s MRI, they would expect other aspects like his EEG and neurological exam to correspond, but they don’t as of yet. Lemuel is still in a coma and and has some response to stimuli to touch in his hands and feet and his eyes are responding reactively to light.
We need Lemuel to start waking up, coughing, and gaining a gag reflex.
General Health Update
Lem’s general health is doing well, with a solid heart beat, adequate kidney function, bowels that seem to be coming back online, and after fighting off pneumonia his lung function is doing very well. He is still on the ventilator, but is currently on a setting where he initiates his all of his own breaths. His vital signs are staying very consistent and in a healthy range.
He is also receiving breast milk from his mother, through a tube, and seems to be doing well as they increase the daily amount required to sustain proper nutrition.
We have been taken care of with such diligence and love by our team of doctors, nurses, respiratory therapist, general staff, and housekeeping at Mary Bridge Children’s Hospital.
I also want to just say that I have the most amazing wife who has not left the room as she seeks to care for our son. Our children have also been extremely supportive, visiting regularly, with some of the older ones staying overnight throughout this past 8 days. Our oldest son Samuel has also been here with my wife and I every night except one, helping me take the night shift watching over Lemuel.
Our church family, neighbors, and friends have been so generous to provide meals for our children at home, given gift cards, and offered to help in a variety of ways. Right, now we don’t know all the ways we may need your help, but give us a month, and we may realize something we do not yet know.
We remain in awe of the outpouring of prayer support, Facebook comments, and text messages from many people around the World. It has truly been humbling. We are sorry that we can’t possibly respond to them all but know they mean a lot to us.
Lastly, I want to say thank you for all of you who have helped support our family through the youcaring.com account that was set up. Both sharing the link and giving are helpful. We don’t know all that the future has, but having been in the hospital with the long term care of our daughter Anna-Renee, who had a bone-marrow transplant 3.5 years ago, we know that it becomes very expensive, just maintaining life, living at home and the hospital. Every little bit helps and is very appreciated.